Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire
Identifieur interne : 000766 ( Main/Exploration ); précédent : 000765; suivant : 000767Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire
Auteurs : Helen Twohig ; Georgina Jones [Royaume-Uni] ; Sarah Mackie [Royaume-Uni] ; Christian Mallen [Royaume-Uni] ; Caroline Mitchell [Royaume-Uni]Source :
- Pilot and Feasibility Studies [ 2055-5784 ] ; 2017.
Abstract
The development of a patient-reported outcome measure (PROM) for polymyalgia rheumatica (PMR), a condition that causes pain, stiffness and disability, is necessary as there is no current validated disease-specific measure. Initial literature synthesis and qualitative research established a conceptual framework for the condition along with a list of symptoms and effects of PMR that patients felt were important to them. These findings were used to derive the candidate items for a patient-completed questionnaire. We aim to establish the face validity of this initial “long form” of a PROM.
People with a current or previous diagnosis of PMR were recruited both from the community and from rheumatology clinics. They were asked to complete the PMR questionnaire along with the QQ-10 questionnaire, which is a measure used to assess the face validity, feasibility and utility of patient healthcare questionnaires.
A total of 28 participants with an age range of 59–85 years and a length of time since diagnosis from 4 months to 18 years completed the QQ-10. The overall mean “value” score was 79% (SD 12), and the mean “burden” score was 21% (SD 18). The free-text comments were analysed thematically and were found to focus on layout, content, where in the clinical pathway the questionnaire would be most beneficial, specific items missing and other areas for consideration.
The high mean value score and low burden score indicate that the questionnaire has good face validity and is acceptable to patients. The questionnaire now needs to undergo further psychometric evaluation and refinement to develop the final tool for use in clinical practice and research.
Url:
DOI: 10.1186/s40814-017-0150-y
PubMed: 28694986
PubMed Central: 5501557
Affiliations:
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7AU UK</wicri:noCountry></affiliation></author><author><name sortKey="Jones, Georgina" sort="Jones, Georgina" uniqKey="Jones G" first="Georgina" last="Jones">Georgina Jones</name><affiliation wicri:level="1"><nlm:aff id="Aff2"><institution-wrap><institution-id institution-id-type="ISNI">0000 0001 0745 8880</institution-id><institution-id institution-id-type="GRID">grid.10346.30</institution-id><institution>Faculty of Health and Social Sciences,</institution><institution>Leeds Beckett University,</institution></institution-wrap>Leeds, UK</nlm:aff><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Leeds</wicri:regionArea></affiliation></author><author><name sortKey="Mackie, Sarah" sort="Mackie, Sarah" uniqKey="Mackie S" first="Sarah" last="Mackie">Sarah Mackie</name><affiliation wicri:level="1"><nlm:aff id="Aff3"><institution-wrap><institution-id institution-id-type="ISNI">0000 0004 1936 8403</institution-id><institution-id 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when="2017">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Background</title><p id="Par1">The development of a patient-reported outcome measure (PROM) for polymyalgia rheumatica (PMR), a condition that causes pain, stiffness and disability, is necessary as there is no current validated disease-specific measure. Initial literature synthesis and qualitative research established a conceptual framework for the condition along with a list of symptoms and effects of PMR that patients felt were important to them. These findings were used to derive the candidate items for a patient-completed questionnaire. We aim to establish the face validity of this initial “long form” of a PROM.</p></sec><sec><title>Methods</title><p id="Par2">People with a current or previous diagnosis of PMR were recruited both from the community and from rheumatology clinics. They were asked to complete the PMR questionnaire along with the QQ-10 questionnaire, which is a measure used to assess the face validity, feasibility and utility of patient healthcare questionnaires.</p></sec><sec><title>Results</title><p id="Par3">A total of 28 participants with an age range of 59–85 years and a length of time since diagnosis from 4 months to 18 years completed the QQ-10. The overall mean “value” score was 79% (SD 12), and the mean “burden” score was 21% (SD 18). The free-text comments were analysed thematically and were found to focus on layout, content, where in the clinical pathway the questionnaire would be most beneficial, specific items missing and other areas for consideration.</p></sec><sec><title>Conclusions</title><p id="Par4">The high mean value score and low burden score indicate that the questionnaire has good face validity and is acceptable to patients. The questionnaire now needs to undergo further psychometric evaluation and refinement to develop the final tool for use in clinical practice and research.</p></sec></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Mackie, Sl" uniqKey="Mackie S">SL Mackie</name></author><author><name sortKey="Mallen, Cdm" uniqKey="Mallen C">CDM Mallen</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Dejaco, C" uniqKey="Dejaco C">C Dejaco</name></author><author><name sortKey="Singh, Yp" uniqKey="Singh Y">YP Singh</name></author><author><name sortKey="Perel, P" uniqKey="Perel P">P Perel</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Duarte, C" uniqKey="Duarte C">C Duarte</name></author><author><name sortKey="Ferreira, Jo" uniqKey="Ferreira J">JO Ferreira</name></author><author><name sortKey="Mackie, Sl" uniqKey="Mackie S">SL Mackie</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Mackie, Sl" uniqKey="Mackie S">SL Mackie</name></author><author><name sortKey="Arat, S" uniqKey="Arat S">S Arat</name></author><author><name sortKey="Da Silva, J" uniqKey="Da Silva J">J da Silva</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Helliwell, T" uniqKey="Helliwell T">T Helliwell</name></author><author><name sortKey="Brouwer, E" uniqKey="Brouwer E">E Brouwer</name></author><author><name sortKey="Pease, Ct" uniqKey="Pease C">CT Pease</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Twohig, Hj" uniqKey="Twohig H">HJ Twohig</name></author><author><name sortKey="Mitchell, Cm" uniqKey="Mitchell C">CM Mitchell</name></author><author><name sortKey="Mallen, Cdm" uniqKey="Mallen C">CDM Mallen</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Moores, Kl" uniqKey="Moores K">KL Moores</name></author><author><name sortKey="Jones, Gl" uniqKey="Jones G">GL Jones</name></author><author><name sortKey="Radley, Sc" uniqKey="Radley S">SC Radley</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Prescott, Rj" uniqKey="Prescott R">RJ Prescott</name></author><author><name sortKey="Counsell, Ce" uniqKey="Counsell C">CE Counsell</name></author><author><name sortKey="Gillespie, Wj" uniqKey="Gillespie W">WJ Gillespie</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Boyatzis, Re" uniqKey="Boyatzis R">RE Boyatzis</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Vij, M" uniqKey="Vij M">M Vij</name></author><author><name sortKey="Srikrishna, S" uniqKey="Srikrishna S">S Srikrishna</name></author><author><name sortKey="Robinson, D" uniqKey="Robinson D">D Robinson</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Vella, M" uniqKey="Vella M">M Vella</name></author><author><name sortKey="Robinson, D" uniqKey="Robinson D">D Robinson</name></author><author><name sortKey="Cardozo, L" uniqKey="Cardozo L">L Cardozo</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Dasgupta, B" uniqKey="Dasgupta B">B Dasgupta</name></author><author><name sortKey="Cimmino, Ma" uniqKey="Cimmino M">MA Cimmino</name></author><author><name sortKey="Maradit Kremers, H" uniqKey="Maradit Kremers H">H Maradit-Kremers</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Bahlas, S" uniqKey="Bahlas S">S Bahlas</name></author><author><name sortKey="Ramos Remus, C" uniqKey="Ramos Remus C">C Ramos-Remus</name></author><author><name sortKey="Davis, P" uniqKey="Davis P">P Davis</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Mackie, Sl" uniqKey="Mackie S">SL Mackie</name></author><author><name sortKey="Hensor, Em" uniqKey="Hensor E">EM Hensor</name></author><author><name sortKey="Haugeberg, G" uniqKey="Haugeberg G">G Haugeberg</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Jones, G" uniqKey="Jones G">G Jones</name></author><author><name sortKey="Kennedy, S" uniqKey="Kennedy S">S Kennedy</name></author><author><name sortKey="Barnard, A" uniqKey="Barnard A">A Barnard</name></author></analytic></biblStruct><biblStruct></biblStruct></listBibl></div1></back></TEI><affiliations><list><country><li>Royaume-Uni</li></country></list><tree><noCountry><name sortKey="Twohig, Helen" sort="Twohig, Helen" uniqKey="Twohig H" first="Helen" last="Twohig">Helen Twohig</name></noCountry><country name="Royaume-Uni"><noRegion><name sortKey="Jones, Georgina" sort="Jones, Georgina" uniqKey="Jones G" first="Georgina" last="Jones">Georgina Jones</name></noRegion><name sortKey="Mackie, Sarah" sort="Mackie, Sarah" uniqKey="Mackie S" first="Sarah" last="Mackie">Sarah Mackie</name><name sortKey="Mallen, Christian" sort="Mallen, Christian" uniqKey="Mallen C" first="Christian" last="Mallen">Christian Mallen</name><name sortKey="Mitchell, Caroline" sort="Mitchell, Caroline" uniqKey="Mitchell C" first="Caroline" last="Mitchell">Caroline Mitchell</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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